Saturday, November 26, 2011

Poppa Burt salutes memory of little Champ

Poppa Burt salutes memory of little Champ

I still carry his tooth print on my arm.

My baby boy, the kid who medical science said couldn't survive, rested against my shoulder. He squirmed around, turned his head and gummed my left bicep.

"Ow!"

That's how I found out Josh was teething.

Joshie was born Feb. 24, 1989, in Springfield, Ill., and spent the first 28 days of his life in a neonatal intensive care unit. A mixed diagnosis and unanswered questions boiled down essentially to fantastic hydrocephalus – fluids built up in his head, his skull plates enlarged, and, according to the X-rays, the vast majority of his brain was ruined.

"When can we take him home?"

The neonatal neurologist's eyes widened. "You want to take him home?"

"Um, yeah."

Josh was sent home with a death sentence. Maybe he can make it four months. Don't expect anything. He'll never communicate, never recognize his parents, never live. Never, never, never, never. Just make him comfortable and don't get too emotionally involved.

One of the first lessons Josh taught me was this: Never listen to the nevers; you'll miss the miracles.

Also, don't let teething babies gum your arms.

No, Josh didn't talk. But he communicated well if you cared to learn the foreign language.

No, he didn't walk. But he gasped into some of the most refreshing giggle fits when someone held him up and "walked" him crosswise the floor. I'm guessing he was itching to learn.

I nearly gasped into giggle fits myself each time I watched this "bear with very small brain" play mind games with "experts."

I smiled like the simpleton he was held to be when I watched Josh light up at people who treated our small guy like a small boy, not a lab conduct experiment they felt compelled to classify somewhere in textbooks.

Sometimes, the smile turned sheepish as I saw how carefully my youngster tracked pretty young blondes with soft voices. Kid. You're too young.

And yes, he certainly knew who his parents and huge sister were. Against medical advice, his mommy never doubted that he would. It's incredible how often moms trump doctors.

Joshie died Nov. 25, 1998, 13 years ago today. He as 9 years and 9 months ancient – roughly 29 times the life expectancy allotted by medical science. I guess we forgot to make him comfortable when we took him home. Really, wrestling on the floor with his dad and taking bumpy wheelchair rides seemed to rank among Josh's favorite actions. Going home to be place on ridge without attachment – not so much.

Josh taught this dear ancient dad wonderful lessons about possibilities, faith, fun, patience, persistence – and miracles.

I still carry his footprint on my heart.

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